Cystic Fibrosis Foundation

Organization Description: 

The Foundation is the leading organization in the United States devoted to cystic fibrosis. It funds and accredits more than 115 CF care centers, 95 adult care programs and 50 affiliate programs, and more than 75 chapters and branch offices nationwide.

The Cystic Fibrosis Foundation is one of the most efficient organizations of its kind and is an accredited charity of the Better Business Bureau's Wise Giving Alliance.

The Foundation's business model has been recognized by the National Institutes of Health and by publications such as Forbes, The New York Times, The Wall Street Journal and BusinessWeek.

When the Foundation was established in 1955, children with CF were not expected to live long enough to attend elementary school. Due in large part to the Foundation's aggressive investments in innovative research and comprehensive care, many people with the disease can now expect to live into their 30s, 40s and beyond.

In 1989, CF Foundation-supported scientists discovered the defective gene that causes cystic fibrosis—a monumental breakthrough on the road to a cure.

The Foundation has played an integral role in the development and FDA approval of four therapies that are now a routine part of treatment regimens for many with CF. The Foundation is actively supporting approximately 30 potential new treatments currently in development—that's more than in the entire history of the disease. Our challenge is to find enough patients to join clinical trials to keep the research moving forward.

Volunteers are the key to our success, and we encourage you to get involved! Whether you join a committee and help get sponsors for an event, recruit companies to put together walk teams or volunteer time in our office, you help us achieve our mission—curing and controlling cystic fibrosis. Take a moment to see what a difference you can make by supporting events throughout the year. Together, we can continue adding tomorrows every day to the lives of people with CF.

Location: 
2727 Enterprise Parkway
Richmond, VA 23294
Map: 
Mission Statement: 

The mission of the Cystic Fibrosis Foundation, a non profit donor supported organization, is to assure the development of the means to cure and control Cystic Fibrosis and to improve the length and quality of life of those with the disease.

EIN: 
13-1930701
Do You Require Formal Orientation Training for Volunteers?: 
No
Are more than one-third of the participants in your organization/programs low income (below 150% of the poverty level)?: 
No
Primary Types of Volunteer Opportunities: 
City/Metropolitan Area: 
State/Province: 
Country: 
Service Area: 
Program Types: 
Organization Membership Type: 
NTEE Code: 
G200
Assets: 
$221,040,934.00
Assets Bucket: 
$50,000,000-$250,000,000
Income: 
$250,179,596.00
Income Bucket: 
$250,000,000-$1,000,000,000
Form 990 Revenue Amount: 
$134,467,821.00