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Cystic Fibrosis Foundation

Organization Description: 

The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for cystic fibrosis. We fund more CF research than any other organization, and nearly every CF drug available today was made possible because of Foundation support.

We are a nonprofit donor-supported organization dedicated to attacking cystic fibrosis from every angle. Our focus is to support the development of new drugs to fight the disease, improve the quality of life for those with CF, and ultimately to find a cure.

The Foundation's drug development model has been recognized by Harvard Business School and by publications such as Forbes, The New Yorker, and Bloomberg BusinessWeek.

Based in Bethesda, Md., the Foundation funds and accredits a national care center network that has been recognized by the National Institutes of Health as a model of care for a chronic disease.

The Cystic Fibrosis Foundation is one of the most efficient organizations of its kind and is an accredited charity of the Better Business Bureau's Wise Giving Alliance.

When the Foundation was established in 1955, children with CF rarely lived long enough to attend elementary school. Due in large part to the Foundation's aggressive investments in innovative research and comprehensive care, many people with the disease can now expect to live into their 30s, 40s and beyond.

In 1989, CF Foundation-supported scientists discovered the defective gene that causes cystic fibrosis — a monumental breakthrough on the road to a cure.

The Foundation played an integral role in the development and FDA approval of four therapies that are now a routine part of treatment regimens for many with CF. The Foundation is actively supporting nearly 30 potential new treatments currently in development — that's more than in the entire history of the disease. One groundbreaking potential drug that treats the underlying cause of CF will be submitted for FDA review in late 2011.

Website: 
http://www.cff.org
Location: 
Cystic Fibrosis Foundation
Richmond, VA 23229
Map: 
Mission Statement: 

The mission of the Cystic Fibrosis Foundation is to assure the development of the means to cure and control cystic fibrosis and to improve the length and quality of life for those with the disease.

EIN: 
13-1930701
Do You Require Formal Orientation Training for Volunteers?: 
No
Do you have a listing of your volunteer opportunities on your organization’s website?: 
Yes
Are more than one-third of the participants in your organization/programs low income (below 150% of the poverty level)?: 
No
City Vision Site Interest: 
0
Primary Types of Volunteer Opportunities: 
Local Volunteering
International Volunteers: 
Must Be Resident of Country or Already Have Appropriate Visa
City/Metropolitan Area: 
Richmond, VA
State/Province: 
Virginia
Region: 
Northern America
Country: 
United States
Service Area: 
Directly Serving People
Event Planning
Fundraising
Program Types: 
Other Program
Volunteer Information: 
Great for Teens
Great for Groups
Great for Families
Organization Membership Type: 
Non-Profit (Non-Christian)
Web Address of Organization Volunteer Opportunity Listings: 
View Listings
NTEE Code: 
G200
Assets: 
$221,040,934.00
Assets Bucket: 
$50,000,000-$250,000,000
Income: 
$250,179,596.00
Income Bucket: 
$250,000,000-$1,000,000,000
Form 990 Revenue Amount: 
$134,467,821.00